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Sim Card SeizureGrand mal epilepsy?

My buddy has grand mal epilepsy. He was diagnosed when he was 22 and he is now 34. The drugs he takes are Dilantin, Keppra and Valium (all 3:00). A few years ago his attacks were very serious and he almost died 15 times. Whenever a crisis and was taken by ambulance, I'm terrified he will die on me. My boyfriend has a very good day, and then very bad day. 5 years ago, he was home alone and had a severe attack. He had stopped breathing for a period of time and the doctors said he would have brain damage pernemant (vegetative state), but three weeks later he was completely back to normal. We looked at him with the SIM card like something inserted in his brain to control seizures, but her neurologist said it will make no difference to him. It is the highest available drugs and I also fear he will become immune to the medication and he will not be all he can take. Can someone please give me some advice

I'm 23 and I had epilepsy my whole life. I had my right temporal lobe removed at the age of 13 (on a baseball game companies right brain) and have always grandmal 5-10 seizures a year. Before surgery, if I had about 50 seizures petitmal month.

I have been in the situation of your friend. I was rushed to the emergency room more times than I can count, I took all the drugs there - Dilantin, Neurontin, Tegretol, Lamictal, Depakote, adavan, etc. (currently on Keppra Lamactil +) I 've had more MRI, EEG, PET that my whole city combined household population. I had a huge part of my brain removed and I am still working.
But I dated a girl of 6 years and possibly the one thing that separated us was its inability to process or accept my epilepsy and all its side effects (no driving, often hospitalized, oppurtunities limited work, bad memory, drowsiness, frequent). So my advice comes from someone who was probably closer to the position of your boyfriend as your own. The best thing you can do is the following:

1st: educate yourself. Jump to www.epilepsyfoundation.org and get some firsthand information from experts. See if you can identify the types of seizures he had so that you may be better able to answer him when he arrives. If you can educate yourself on the many types of seizures so that you can identify them as having, you have a better idea of when it is really serious, where the minor, and what you should do. This site is full of useful information, you must learn as much as you can from there and other places.
In addition, there are also some great forums on this site where people can share stories, experiences, tips, etc. Look up under "eCommunities" create a profile. I just found this site there are some months and has been a true blessing for me - it is full of people who have dealt with epilepsy who have a lot of useful information and support (if you go there, I am "MountaineerMan" and I have used to post on the Friends of family relationships "forum).

2nd: Try to remain optimistic for him and show him that. He does not need to hear someone around him telling him how horrible his epilepsy or how unfair life is or how best most people have. If these thoughts come in your mind, you and your friend should try to remind each other of all the blessings you have received. I know that sounds illogical, but to remind him of things he's lucky for - for me it has always been my family, my friends, my beautiful home (mountain, West Virginia) and my natural talents . Do not lose sight of what makes living life worthwhile.

3rd: Do not let his epilepsy or seizures become its main feature. If you are in presenting or speaking to him peopl.

Posted on March 8, 2010.
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